Sunday, March 2, 2014

Hard week now back to Boston

This has been one of the most trying weeks in my whole life. Izabelle has been seizing about seven to ten times a day at all times of her daily life including showering, eating, eliminating, playing and more. She had three at a potluck, two while out bowling... Her meds were adjusted again. I think the increase in Treleptal has taken away just a few seizures a day. I took Thursday and Friday off last week because Izzy was having gastrointestinal issues again. I thought this was due to medication changes but the doctors think not. Snow is on it's way again to Boston so we left today. We managed to get a room for two nights at the Yawkey Family Inn again. They have us four free passes to the aquarium. The woman who works here said to use the other two another time! Also there is free dinner tonight and tomorrow. I still have to shop for Izzy because of her diet. We are goin to take the T tommorow to the aquarium before our appointments. Wish us luck!!!






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