The road narrows...

We traveled to Portland to see Izabelle's neurologist about Izabelle's current med changes and their affect on our life. I have 50+ videos of seizure footage thanks to Robert Moss the inventor of Seizure tracker.com. Izabelle had a seizure in the office. I asked tons of questions. He affirmed that Izabelle's condition was not typical. That normally children respond well to medications. Her condition is very refractory. At this point there may only be 5-6 pharmaceutical drugs that are appropriate for Izabelle to try. We have to finish the Felbamate med trial even if it's causing more seizures. In a week or two Izabelle will have another 72 hr EEG to see what current activity looks like. Keto admission is still set for April 22nd. Hopefully, naturally the seizure count will go down at that point. We are still averaging 7-10 a day now. I'm interviewing with a nursing company on Wednesday to get in home care at least in the mornings before school. If the keto diet doesn't work... It's down to those 5-6 seizure meds, medical marihuana and the vagus nerve stimulator.