PART 1: Some of you may wonder what happened to this beautiful scene, because there has been some severing of ties as of late, and some huge new developments.
In May, I took my ex husband to court bc he and his new wife were not working with me up to the degree Izabelle needed. We went to court and I received temporary full custody just before Izabelle's admission to Boston children's hospital to start the ketogenic diet. Dale and his then wife Miri, came to Boston for a couple days. I was terrified of Miri. I had built her up to be this huge scary force (maybe I should have stuck with that). I was the one who stayed w Izzy in the hospital the full six days. Izabelle struggled with taking her meds. They had went from a yummy sweet grape suspension to a pill crushed in applesauce, water or yogurt at the time. I had no clue at the time how awful 1/4 tsp of baking soda tasted and the nurses began to mix her sodium bicarbonate (baking soda) in her meds,therefore beginning a huge aversion to taking medicine. For days in the hospital, nurses had to hold Izabelle down and force her to take her meds. Once home, Izabelle fought me the first night in a heated anxiety provoked fury. I called in all my friends for days... But quickly realized that I couldn't handle her on the ketogenic diet on my own. I had already applied for a in home nurse but no one was available. I was broken down, miserable and feeling like a failure of a mother. I was so scared for Izabelle's life. I called her Dad one night when I was at my last rope. Between the two of us, we were able to coax izzy into taking her medicine. Eventually, I was so worn out that I broke down emotionally. I handed Izabelle over to her dad and her then step mom for a whole week. Somehow, Miri and Dale got Izabelle to take her meds and I immediately felt like an even worse parent. At the time, I had been w Izabelle for 70-80% of the time. I was her constant, although I couldn't understand why they could 'force' her to take her meds and I couldn't. It just wasn't in me. I could sense Izabelles distress and it killed me to force her into something she didn't want to do. That was how my relationship w Miri started. She had me in a low place. I felt bad about myself as a mom and she seemed to thrive on that. I gave Miri the benefit of the doubt, a good ole try. I was very cautious. Immediately, she began to open up to me and I listened. Whenever we went to doctors visits she dominated the conversation and made herself out to be the savior. She even had me believing I wasn't good at disciplining my child and that's why Izabelle wouldn't take her meds after being discharged from the hospital! She even had the doctors believing this! The behaviorist and the neuro in Boston! I was so burnt out from pushing for Izabelle's needs that I almost gave up. We did the ketogenic diet for six months. I started to realize that it wasn't working in October 2014. I told Miri and Dale that I thought it was making matters worse. For a whole day, Miri bullied me via text and email into keeping izzy on the diet. Not because it was good for izzy but bc Miri was so good at it and was hell bent on continuing the prison we were all living in. What she said made me feel like I was giving up on my child. She was so pushy, hurtful and had my former husband believing she was right. In December, we went to the neuro for a EEG and follow up. He said that the diet didn't work and that her seizures were worsening.
I was right.
Six months of hell ended around Christmas while Miri took it on herself to wean the diet over the holiday break.
Our next route was medical merhiuana. The doctor gave us a perscrip on the spot. While I was busy at work the week after, Miri busily called around for dispensaries and asked questions. We were all so busy, so the info didn't get transferred immediately. Miri went to Georgia for 10 days. While she was gone, Izzys seizures got worse to the point of three grand mals a night. I think I developed PTSD at this point from hearing her scream in her sleep (I haven't told everyone, but I had to go to my doctor bc I literally stopped sleeping myself). I texted Izzys dad and got permission to go to the dispensorary to get our first round of Mj. I didn't have time to text Miri and I guess neither did Dale. By the time I was at the dispensorary, Miri had found out what I was up to and was furious. She texted me relentlessly, threw accusations and put downs via text, literally while I was trying to get medicine to help my daughter! I told her it wasn't good timing and to stop (I never lashed back). She wouldn't stop. I had to block her phone calls, texts... And later my former husband's email that she used to bombard me with more tongue lashings. I also learned that when she is hurt (even if the actions of others were unintentional) that she lashes out.. I had to cut her out of my life and raise my daughter with her Dad again. She had overstepped too many times.
I am so happy to be raising my daughter with her father again...
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