Tuesday, December 17, 2013

A long night and stressful morning but we made it!!!

Last night was a long night. Today was the ICTAL spect and the goal was to have Izabelle seize between 8:30am and 2:00pm. We stayed up until 11:30pm, then at 4:00am we were woke up by a nurse. The doctor instructed that I keep Izabelle awake for two hours then put her back to sleep. We were hoping that Izabelle would wake with a seizure. We made and hung tons of snowflakes, watched the Disney channel and went back to bed. Of course Izabelle woke at 7:15 bright eyed. I tried to get her back to sleep knowing the ISOTOPE wouldn't be delivered until 8:00 am or later. Izabelle seized at 7:50am... the nurse team rushed in to find us in the bathroom. An interesting pattern occurred... The tech would often notice seizure activity seconds before the onset of physical markers that I notice. We waited for another seizure but when the tech saw activity on the EEG I wouldn't. We were waiting for a larger seizure with physical markers. As a last resort I layed with Izabelle and tried to get her to take a nap. When I was ready to give up...there it was. I yelled out to the techs pushed buttons and the nurses ran in to administer the isotope via iv. Izabelle had no idea what was going on and was happy that she no longer had to take a nap. While we were waiting to have the spect we were entertained by a couple of clowns.

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