Saturday, May 31, 2014

United Front

God truly works in mysterious ways. The onset of the ketogenic diet was nothing I could have ever imagined... I had no idea what an abrupt life change this would be and also that it is impossible to do alone. Izabelle has still been refusing to take medicine( new form since keto )from me and others I have had at the house since last Saturday night. On Wednesday, Izabelle refused to take her morning medications before school from myself and a good friend. Our back up plan was to have the school nurse give Izabelle her meds at school. While teaching fifth grade art in my classroom I received a phone call from her school. Izabelle had refused her medication from the school nurse even with incentives such as visiting good friends and a prize box. I left as soon as I could and set up a plan with Izabelle's other half (her dad and step mom) so they could give her the medication for me. We met in a parking lot half way and they administered it with less struggle then I have been facing. Izabelle and I returned home. I was on the phone with her step mother when Izabelle began to go in and out of seizures... Until she froze and wouldn't come out of it. I had to administer diastat. She didn't come back right away so I called 911 for back up. I had no idea that missing a medication by four hours would create a 25 minute seizure. Izabelle came to before the ambulance arrived. They checked her out and stayed until I could locate a back up Diastat for later. I brought Izabelle to her Dad that night. On Thursday, Izabelle refused again. I broke down crying and knew that at least for now it was best if she stayed at her fathers where she would be assured to get her medications on time at least until our next appointment on Monday. 

It is so hard to be in this place right now. I think Izabelle associates me with the trauma from the hospital stay and almost blames me for her life turning upside down. My eyes have been peeled wide open. She behaves so much better at her Dads house. I also think that two parents are definitely better then one at this point. I've been too emotionally drained by all of these med changes and now the diet trial. I'm working to recharge and take on this challenge. Tomorrow morning I'm going to show up at Izabelle's Dads house and start a slow process of reintroducing Izabelle to taking her medication from me gradually with the support of both her father and step mom. I never thought anything like this would ever happen. Just trying to stay positive and remember how hard I have fought to get Izabelle where she is today. In a way I have held on so tight and plowed through, biting my lip through all of this on my own. It's nice to have help from Izabelle's other parents. Three is better then one. We are uniting for the sake of our child and I'm beginning to think this is what she has needed all along. 

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