My snow princess

It is hard to put into words what our experience here has been. Honestly I have gotten used to our crazy sleep deprived routine: keep the kid up late, sleep until four am, up for two hours and pray that a seizure doesn't appear until after eight am when the Isotope arrives and is set up in The IV. Yesterday, Izabelle had a seizure on time...it was the timing of the injection that was off. The amazing thing is that in six days by changing Izzys sleep routine her morning seizure has shifted from four or five am to seven or eight am. This morning she had a classic seizure at 7:20 :( . I was so worried that we wouldn't catch one today. We had a wonderful nurse Laura with us all morning. Izzy had a staring seizure. No other physical signs but a stare. The team was going based on physical signs that I would detect then inject. The doctors came and said that the next time her pattern on the EEG detected a seizure that we would inject regardless of physical signs. I'm not sure if these are absence seizures or not...but there are a few different types of seizures happening. So, as izzy was applying multiple temporary tattoos... The tech made a loud all call and a nurse just happened to be near our room. She stalled for a second and I told her to inject! It was a scene for sure...meanwhile izzy has no idea of what is happening. After waiting for the doctors to make a decision of the timing of the injection..the EEG tech came cheerfully into the room and said 'We did it!'. I gave her a big hug! We truly are in good hands. Thank God! Izzy is in recovery now sleeping soundly. Tomorrow we will venture home.