Sunday, December 8, 2013

An Overview

Over the past two years I have been on a journey as a mother seeking medical help for my daughter Izabelle who was diagnosed with Epilepsy in 2011. We are at the point where we have been referred to Boston Children's Hospital Neurology. Izabelle's medications are not controlling seizures at this time and we have tried many.

The week of December 16th, Izabelle and I will be staying at Boston Children's for five consecutive days for a multitude of tests including an EEG with video monitoring, a PET scan and two Ictal Spects. We are at a fork in the road at this moment. If the results indicate that there is a particular area of the brain in which the seizures occur, it may be determined that Izabelle is a surgical candidate. If not, we will be looking into the ketogenic diet, the vagus nerve stimulator and other medication options.

 I have created this blog so friends and family can keep up with our journey. We will depart for Boston on Sunday, December 15th.
Posted by at

1 comment:

  1. AnonymousDecember 9, 2013 at 6:25 AM

    Rachel - You are doing a fantastic job dealing with these issues on your own. Your cheerful demeanor is always highly visible and your positive attitude is going to go a long way towards helping Izabelle.

    ReplyDelete

Subscribe to: Post Comments (Atom)