Going back in time…starting with the most recent test.

A picture from Boston Children's in October. Waiting for sedation for a MRI. The results didn't indicate any area damage of the brain. Just a small cardiovascular space that they believe is a normal variant. Izabelle is on Zonisamide and Trileptal. Her seizures remain controlled for three weeks.

In the beginning of September 2013 we had a 4 hour EEG in office to see how effective the addition of the medication Zonisamide was. No seizures were detected.

This is Izabelle keeping busy during our stay at Barbara Bush hospital in August of 2013. We were able to catch a few seizures on video and were sent home a day early. The results of the EEG were the same as in June of 2013. Lots of abnormal seizure activity. This is when Zonisamide was added and we were referred to Boston Children's Hospital.

We were serenaded.

Upon our departure. The EEG tech. was awful and left Izabelle's hair full of glue and other solvents. We needed a hat and this is what the nurses gave us during the summer...

June 1st, 2013
Getting set up for an 72 hour Ambulatory EEG in Portland. We find out that Izabelle was having about 40 seizures in a 24 hour period. I only witnessed four during the entire test. Dr. Morrison in Portland is very concerned and at this point I can't believe my baby has gone through basically an entire year of school like this. Dr. Morrison starts Izabelle on a few different meds. She doesn't respond to them the way that other children do. When Depekote is added, Izabelle begins to have more frequent seizures. I call and call the doctor's office like a mad woman. It takes three weeks of suffering to finally get the doctor to wean her off and put her back on her old med. We are back to square one.