The fight for answers resumes...

I've just about had it! Seizures are back in full swing just as if we never tried any other measures to control them. We've been trying various amounts and types of medical cannabis since late December to no avail. Last week Izabelle pretty much went into status for three days. Diastat and Adivan failed to stop them quickly. We were told to up pharmaceutical meds again by our neurologist. We have noticed that Izabelle has been coming down with low grade fevers consistently for weeks. We had every test in the book done to rule out infection. No infections or anything irregular about her bloodwork or urine analysis. 

Today we visited Dr. Smith for a Genetics consult. The day started out with a grand mal at home. Izabelle had a second grand mal in the car on the way there. I had to administer diastat on the side of the highway. It was another first for me. I left her unconscious in the back seat and continued driving her to the appointment. I had already called the neuro office and knew that if anything else happened that we would be in good hands. When I arrived, I called the doctors office and asked for a wheel chair to transport Izabelle inside. 

She slept through most of the appointment. Dr. Smith will be looking at Izabelle's chromosomes and DNA more closely. I may also go through with some testing myself. I'm also relieved that Dr. Smith will also be doing a whole metabolic panel as well. Not one doctor has recommended this and I hope we learn something! I have also requested another MRI and may be doing some spinal fluid testing for neurotransmitters in the future.  Tomorrow we go see a neurosurgeon regarding the VNS implant. I hope it's an easier day of traveling.