More direction ->

This is a picture from our time at Boston Children's in December. It looks like we will be headed down there again at the end of the month. I had the most productive appointment with Izabelle's Portland Neurologist Peter Morrison on Friday. I was overly prepared with notes and tons of questions. I even taped our conversation. I first had to let him know what happened while we were at Boston Children's because they failed to provide him with notes about her EEG and video monitoring. He did have all the radiology imaging. At this point, although overwhelmed I feel like we have more direction and more hope.
At this point, this is our plan:
Genetic testing - We will have genetic testing to see if Izabelle has inherited the predisposition for Epilepsy. This will help with med choices and pin pointing her type of Epilepsy.
Investigating Charlotte's Web/Medical Marijuana without THC - I will be meeting with a team of professionals out of Portland who have created a tincture that contains the helpful benefits of Marijuana without the THC high component. The doctor was all about this option and I was quite surprised.
I'm glad I asked!
Pharmaceutical med changes - Izabelle will start a new med tonight and we will start reducing Zonisamide.
Developmental Testing - We will be seen by a child developmental specialist to determine ways that we can best assist Izabelle through transitions and daily life as Epilepsy is truly taking a toll on her ability to be independent.
The Ketogenic Diet - We will be headed to Boston Children's to meet with Dr. Bergin again, this time to discuss the Ketogenic diet. There is a high possibility that we will start the diet by the end of the school year. This would mean another five day admission to Boston Children's Hospital. 

This is a picture of Izabelle's current medications and vitamin supplements. In the box behind I have prepared a card with directions for each step of her med changes week by week for her father who she visits on the weekend.
This is our life!